Living with Illness

Adherence to hydroxyurea, health-related quality of life domains, and patients' perceptions of sickle cell disease and hydroxyurea: A cross-sectional study in adolescents and young adults  S.M. Badawy et al., Health and Quality of Life Outcomes, July 2017

Adolescents and young adults with chronic or end-stage kidney disease  M.E. Ferris et al., Blood Purification, January 2016

Association of social-environmental factors with cognitive function in children with sickle cell disease  J. Yarboi et al., Child Neuropsychology, April 2017

Caring for people with severe myalgic encephalomyelitis: An interpretative phenomenological analysis of parents' experiences  M. Mihelicova et al., Journal of Health Psychology, December 2016

Children with chronic illness can have normal life satisfaction  HealthDay News, May 6, 2019

Clinical and economic burden of mental disorders among children with chronic physical conditions, United States, 2008-2013  M.S. Suryavanshi & Y. Yang, Preventing Chronic Disease, May 2016

Clusters of multiple complex chronic conditions: A latent class analysis of children at end of life  Journal of Pain and Symptom Management, May 2016

Effect of elevated blood pressure on quality of life in children with chronic kidney disease  C. Wong et al., Pediatric Nephrology, July 2016

Elevated prostaglandin E metabolites and abnormal plasma fatty acids at baseline in pediatric cystic fibrosis patients: A pilot study  M.G. O'Connor et al., Prostaglandins, Leukotrienes, and Essential Fatty Acids, October 2016

Ethics, emotions, and the skills of talking about progressing disease with terminally ill adolescents: A review  A.R. Rosenberg et al., JAMA Pediatrics, December 2016

Executive functioning and school performance among pediatric survivors of complex congenital heart disease  M. Gerstle et al., Journal of Pediatrics, June 2016

Executive functioning profiles from the BRIEF across pediatric medical disorders: Age and diagnosis factors  L.S. Krivitzky et al., Child Neuropsychology, July 2016

An exploratory survey of end-of-life attitudes, beliefs, and experiences of adolescents with HIV/AIDS and their families  P.A. Garvie et al., Journal of Pain and Symptom Management, September 2012

Family strategies to support siblings of pediatric hematopoietic stem cell transplant patients  T.E. White et al., Pediatrics, February 2017

Financial and social hardships in families of children with medical complexity  J. Thomson et al., Journal of Pediatrics, May 2016

Functional capacity in congenital heart disease: A systematic review and meta-analysis  C.W. Schaan et al., Arquivos brasileiros de cardiologia, October 2017

Functional recovery following critical illness in children: The "Wee-cover" pilot study  K. Choong et al., Pediatric Critical Care Medicine, May 2015

ICF-based functional components and contextual factors as correlates of perceived quality of life for youth with chronic conditions  J. McDougall et al., Disability and Rehabilitation, December 2014

Impact of adolescent mental disorders and physical illnesses on quality of life 17 years later  H. Chen et al., Archives of Pediatrics & Adolescent Health, January 2006

Internet use by parents of children with rare conditions: Findings from a study on parents' Web information needs  H. Nicholl et al., Journal of Medical Internet Research, February 2017

Mental health challenges among adolescents living with HIV  R.C. Vreeman et al., Journal of the International AIDS Society, May 2017

A micro-developmental view of parental well-being in families coping with chronic illness  T.L. Queen et al., Journal of Family Psychology, October 2016

Pain rescue team helps seriously ill kids cope in terrible times  A. Kodjak, Shots: Health News from NPR, August 5, 2019

Perceived appetite and clinical outcomes in children with chronic kidney disease  F.W. Ayestaran et al., Pediatric Nephrology, July 2016

Point prevalence of co-occurring behavioral health conditions and associated chronic disease burden among adolescents  A.H. Kline-Simon et al., Journal of the American Academy of Child and Adolescent Psychiatry, May 2016

Predictors of quality of life among adolescents and young adults with a bleeding disorder  J.M. McLaughlin et al., Health and Quality of Life Outcomes, April 2017

Psychological interventions for parents of children and adolescents with chronic illness  C. Eccleston et al., Cochrane Database of Systematic Reviews, August 2012

Quality of life and school absenteeism in children with chronic illness  N.D. Emerson et al., Journal of School Nursing, August 2016

Sickle cell disease with cyanotic congenital heart disease: Long-term outcomes in 5 children  G.J. Iannucci et al., Texas Heart Institute Journal, December 2016

Sports practice among adolescents with chronic health conditions  I. Pittet et al., Archives of Pediatrics & Adolescent Medicine, June 2009

Suicide and self-injury among children and youth with chronic health conditions  A.J. Barnes et al., Pediatrics, May 2010

Three-year trajectories of global perceived quality of life for youth with chronic health conditions  J. McDougall et al., Quality of Life Research, December 2016

Truth telling in the setting of cultural differences and incurable pediatric illness: A review  A.R. Rosenberg et al., JAMA Pediatrics, November 2017

Vitamin D status in pediatric irritable bowel syndrome  B.U. Nwosu et al., PLoS One, February 2017

Young adult outcomes of children growing up with chronic illness: An analysis of the National Longitudinal Study of Adolescent Health  G.R. Maslow et al., Archives of Pediatrics & Adolescent Medicine, March 2011

Young adult patients with a history of pediatric disease: Impact on course of life and transition into adulthood  H. Stam et al., Journal of Adolescent Health, July 2006